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Living Well with Dementia (IDEAL)

Funder: ESRC
Duration: January 2014 - December 2018

People

Name Telephone Email Office
Professor Christina Victor Professor Christina Victor
Director of Research Institute / Professor
(Principal investigator)
T: +44 (0)1895 268730
E: christina.victor@brunel.ac.uk
+44 (0)1895 268730 christina.victor@brunel.ac.uk Mary Seacole 301b

Outputs

Sabatini, S., Martyr, A., Gamble, L., Jones, I., Collins, R., Knapp, M., et al. (2022) 'Are profiles of social, cultural, and economic capital related to living well with dementia? Longitudinal findings from the IDEAL cohort'. Social Science and Medicine, 317. pp. 1 - 9. ISSN: 0277-9536 Open Access Link

Journal article

Sabatini, S., Martyr, A., Gamble, LD., Jones, IR., Collins, F., Matthews, F., et al. (2022) 'Profiles of social, cultural, and economic capital as longitudinal predictors of stress, positive experiences of caring, and depression among carers of people with dementia'. Aging and Mental Health, 27 (7). pp. 1335 - 1343. ISSN: 1360-7863 Open Access Link

Journal article

Martyr, A., Gamble, L., Nelis, S., Collins, R., Alexander, C., Morris, R., et al. (2022) 'Predictors of Awareness of Functional Ability in People with Dementia: The Contribution of Personality, Cognition, and Neuropsychiatric Symptoms – Findings from the IDEAL Program'. Dementia and Geriatric Cognitive Disorders, 51 (3). pp. 221 - 232. ISSN: 1420-8008 Open Access Link

Journal article

Quinn, C., Gamble, LD., Parker, S., Martyr, A., Collins, R., Victor, C., et al. (2022) 'Impact of COVID-19 on carers of people with dementia in the community: Findings from the British IDEAL cohort'. International Journal of Geriatric Psychiatry, 37 (5). pp. 1 - 11. ISSN: 0885-6230 Open Access Link

Journal article

Clare, L., Gamble, L., Martyr, A., Sabatini, S., Nelis, S., Quinn, C., et al. (2022) 'Longitudinal trajectories of quality of life among people with mild-to-moderate dementia: a latent growth model approach with IDEAL cohort study data'. Journals of Gerontology, Series B, 77 (6). pp. 1037 - 1050. ISSN: 1079-5014 Open Access Link

Journal article

Henderson, C., Knapp, M., Martyr, A., Gamble, LD., Nelis, SM., Quinn, C., et al. (2021) 'The use and costs of paid and unpaid care for people with dementia: longitudinal findings from the IDEAL cohort programme'. Journal of Alzheimer's Disease, 86 (1). pp. 135 - 153. ISSN: 1387-2877 Open Access Link

Journal article

Opdebeeck, C., Katsaris, M., Martyr, A., Lamont, R., Picket, J., Rippon, I., et al. (2021) 'What are the benefits of pet ownership and care among people with mild-to-moderate dementia? Findings from the IDEAL programme'. Journal of Applied Gerontology, 40 (11). pp. 1559 - 1567. ISSN: 0733-4648 Open Access Link

Journal article

Victor, C., Rippon, I., Quinn, C., Martyr, A. and Clare, L. (2021) 'The role of subjective social status in living well for carers of people with dementia: findings from the Improving the experience of Dementia and Enhancing Active Life programme'. International Journal of Care and Caring, 5 (3). pp. 447 - 467. ISSN: 2397-8821 Open Access Link

Journal article

Wu, Y-T., Clare, L., Jones, IR., Nelis, SM., Quinn, C., Martyr, A., et al. (2021) 'Perceived and objective availability of green and blue spaces and quality of life in people with dementia: results from the IDEAL programme'. Social Psychiatry and Psychiatric Epidemiology: the international journal for research in social and genetic epidemiology and mental health services, 56 (9). pp. 1601 - 1610. ISSN: 0933-7954 Open Access Link

Journal article

Victor, CR., Rippon, I., Quinn, C., Nelis, SM., Martyr, A., Hart, N., et al. (2020) 'The prevalence and predictors of loneliness in caregivers of people with dementia Findings from the IDEAL programme'. Aging and Mental Health, 25 (7). pp. 1232 - 1238. ISSN: 1360-7863 Open Access Link

Journal article

Victor, CR., Rippon, I., Nelis, SM., Martyr, A., Litherland, R., Pickett, J., et al. (2020) 'Prevalence and determinants of loneliness in people living with dementia: findings from the IDEAL programme'. International Journal of Geriatric Psychiatry, 35 (8). pp. 851 - 858. ISSN: 0885-6230 Open Access Link

Journal article

Wu, YT., Nelis, S., Quinn, C., Martyr, A., Jones, I., Victor, C., et al. (2020) 'Factors associated with self- and informant ratings of quality of life, wellbeing and life satisfaction in people with mild-to-moderate dementia: Results from the Improving the experience of Dementia and Enhancing Active Life (IDEAL) programme'. Age and Ageing, 49 (3). pp. 446 - 452. ISSN: 0002-0729 Open Access Link

Journal article

Henderson, C., Knapp, M., Nelis, SM., Quinn, C., Martyr, A., Wu, Y-T., et al. (2019) 'Use and costs of services and unpaid care for people with mild-to-moderate dementia: Baseline results from the IDEAL cohort study'. Alzheimer's and Dementia: Translational Research and Clinical Interventions, 5 (1). pp. 685 - 696. ISSN: 2352-8737 Open Access Link

Journal article

Rippon, I., Quinn, C., Martyr, A., Morris, R., Nelis, SM., Jones, IR., et al. (2019) 'The impact of relationship quality on life satisfaction and well-being in dementia caregiving dyads: findings from the IDEAL study'. Aging and Mental Health, 24 (9). pp. 1411 - 1420. ISSN: 1360-7863 Open Access Link

Journal article

Quinn, C., Nelis, S., Martyr, A., Morris, R., Victor, C. and Clare, L. (2019) 'Caregiver influences on ‘living well’ for people with dementia: Findings from the IDEAL study'. Aging and Mental Health, 24 (9). pp. 1505 - 1513. ISSN: 1360-7863 Open Access Link

Journal article

Quinn, C., Nelis, SM., Martyr, A., Victor, C., Morris, RG. and Clare, L. (2019) 'Influence of Positive and Negative Dimensions of Dementia Caregiving on Caregiver Well-Being and Satisfaction With Life: Findings From the IDEAL Study'. American Journal of Geriatric Psychiatry, 27 (8). pp. 838 - 848. ISSN: 1064-7481 Open Access Link

Journal article

Clare, L., Wu, Y-T., Quinn, C., Jones, IR., Victor, C., Nelis, SM., et al. (2019) 'A comprehensive model of factors associated with capability to ‘live well’ for family caregivers of people living with mild-to-moderate dementia: findings from the IDEAL study'. Alzheimer Disease and Associated Disorders, 33 (1). pp. 29 - 35. ISSN: 0893-0341 Open Access Link

Journal article

Clare, L., Wu, Y-T., Jones, IR., Victor, CR., Nelis, SM., Martyr, A., et al. (2019) 'A Comprehensive Model of Factors Associated With Subjective Perceptions of "Living Well" With Dementia: Findings From the IDEAL Study'. Alzheimer disease and associated disorders, 33 (1). pp. 36 - 41. ISSN: 0893-0341 Open Access Link

Journal article

Smith, KJ., Peterson, MD., O'Connell, NE., Victor, C., Liverani, S., Anokye, N. and et al. (2018) 'Risk of Depression and Anxiety in Adults with Cerebral Palsy'. JAMA Neurology, 76 (3). pp. 294 - 300. ISSN: 2168-6149 Open Access Link

Journal article

Litherland, R., Burton, J., Cheeseman, M., Campbell, D., Hawkins, M., Hawkins, T., et al. (2018) 'Reflections on PPI from the ‘Action on Living Well: Asking You’ advisory network of people with dementia and carers as part of the IDEAL study'. Dementia, 17 (8). pp. 1035 - 1044. ISSN: 1471-3012 Open Access Link

Journal article

Clare, L., Wu, Y-T., Jones, IR., Victor, C., Nelis, SM., Martyr, A., et al. (2018) 'O4-08-04: A COMPREHENSIVE MODEL OF FACTORS ASSOCIATED WITH SUBJECTIVE PERCEPTIONS OF LIVING WELL WITH DEMENTIA: FINDINGS FROM THE IDEAL STUDY'.Alzheimer's Association International Conference® 2018. Chicago, IL, USA. 22 - 26 July. Wiley. pp. P1422 - P1423. ISSN: 1552-5260 Open Access Link

Conference paper

Rainey-Smith, SR., Mazzucchelli, GN., Villemagne, VL., Brown, BM., Porter, T., Weinborn, M., et al. (2018) 'O4‐06‐01: GENETIC VARIATION IN AQUAPORINS MODERATES THE RELATIONSHIP BETWEEN SLEEP AND BRAIN Aβ‐AMYLOID BURDEN'. Wiley. ISSN: 1552-5260

Conference paper

Martyr, A., Nelis, SM., Quinn, C., Wu, Y-T., Lamont, RA., Henderson, C., et al. (2018) 'Living well with dementia: a systematic review and correlational meta-analysis of factors associated with quality of life, well-being, and life satisfaction in people with dementia'. Psychological Medicine, 48 (13). pp. 2130 - 2139. ISSN: 0033-2917 Open Access Link

Journal article

Clare, L., Nelis, SM., Quinn, C., Martyr, A., Henderson, C., Hindle, JV., et al. (2014) 'Improving the experience of dementia and enhancing active life - living well with dementia: study protocol for the IDEAL study'. Health and Quality of Life Outcomes, 12 (1). pp. 164. ISSN: 1477-7525 Open Access Link

Journal article

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