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Living Well with Dementia (IDEAL)

Funder: ESRC
Duration: January 2014 - December 2018

People

Name Telephone Email Office
Professor Christina Victor Professor Christina Victor
Director of Research Institute / Professor
(Principal investigator)
T: +44 (0)1895 268730
E: christina.victor@brunel.ac.uk
+44 (0)1895 268730 christina.victor@brunel.ac.uk Mary Seacole 301b

Outputs

Sabatini, S., Martyr, A., Gamble, L., Jones, I., Collins, R., Knapp, M., et al. (2022) 'Are profiles of social, cultural, and economic capital related to living well with dementia? Longitudinal findings from the IDEAL cohort'. Social Science and Medicine, 317. pp. 1 - 9. ISSN: 0277-9536

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Sabatini, S., Martyr, A., Gamble, LD., Jones, IR., Collins, F., Matthews, F., et al. (2022) 'Profiles of social, cultural, and economic capital as longitudinal predictors of stress, positive experiences of caring, and depression among carers of people with dementia'. Aging and Mental Health, 27 (7). pp. 1335 - 1343. ISSN: 1360-7863

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Martyr, A., Gamble, L., Nelis, S., Collins, R., Alexander, C., Morris, R., et al. (2022) 'Predictors of Awareness of Functional Ability in People with Dementia: The Contribution of Personality, Cognition, and Neuropsychiatric Symptoms – Findings from the IDEAL Program'. Dementia and Geriatric Cognitive Disorders, 51 (3). pp. 221 - 232. ISSN: 1420-8008

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Quinn, C., Gamble, LD., Parker, S., Martyr, A., Collins, R., Victor, C., et al. (2022) 'Impact of COVID-19 on carers of people with dementia in the community: Findings from the British IDEAL cohort'. International Journal of Geriatric Psychiatry, 37 (5). pp. 1 - 11. ISSN: 0885-6230

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Clare, L., Gamble, L., Martyr, A., Sabatini, S., Nelis, S., Quinn, C., et al. (2022) 'Longitudinal trajectories of quality of life among people with mild-to-moderate dementia: a latent growth model approach with IDEAL cohort study data'. Journals of Gerontology, Series B, 77 (6). pp. 1037 - 1050. ISSN: 1079-5014

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Henderson, C., Knapp, M., Martyr, A., Gamble, LD., Nelis, SM., Quinn, C., et al. (2021) 'The use and costs of paid and unpaid care for people with dementia: longitudinal findings from the IDEAL cohort programme'. Journal of Alzheimer's Disease, 86 (1). pp. 135 - 153. ISSN: 1387-2877

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Opdebeeck, C., Katsaris, M., Martyr, A., Lamont, R., Picket, J., Rippon, I., et al. (2021) 'What are the benefits of pet ownership and care among people with mild-to-moderate dementia? Findings from the IDEAL programme'. Journal of Applied Gerontology, 40 (11). pp. 1559 - 1567. ISSN: 0733-4648

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Victor, C., Rippon, I., Quinn, C., Martyr, A. and Clare, L. (2021) 'The role of subjective social status in living well for carers of people with dementia: findings from the Improving the experience of Dementia and Enhancing Active Life programme'. International Journal of Care and Caring, 5 (3). pp. 447 - 467. ISSN: 2397-8821

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Wu, Y-T., Clare, L., Jones, IR., Nelis, SM., Quinn, C., Martyr, A., et al. (2021) 'Perceived and objective availability of green and blue spaces and quality of life in people with dementia: results from the IDEAL programme'. Social Psychiatry and Psychiatric Epidemiology: the international journal for research in social and genetic epidemiology and mental health services, 56 (9). pp. 1601 - 1610. ISSN: 0933-7954

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Victor, CR., Rippon, I., Quinn, C., Nelis, SM., Martyr, A., Hart, N., et al. (2020) 'The prevalence and predictors of loneliness in caregivers of people with dementia Findings from the IDEAL programme'. Aging and Mental Health, 25 (7). pp. 1232 - 1238. ISSN: 1360-7863

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Victor, CR., Rippon, I., Nelis, SM., Martyr, A., Litherland, R., Pickett, J., et al. (2020) 'Prevalence and determinants of loneliness in people living with dementia: findings from the IDEAL programme'. International Journal of Geriatric Psychiatry, 35 (8). pp. 851 - 858. ISSN: 0885-6230

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Wu, YT., Nelis, S., Quinn, C., Martyr, A., Jones, I., Victor, C., et al. (2020) 'Factors associated with self- and informant ratings of quality of life, wellbeing and life satisfaction in people with mild-to-moderate dementia: Results from the Improving the experience of Dementia and Enhancing Active Life (IDEAL) programme'. Age and Ageing, 49 (3). pp. 446 - 452. ISSN: 0002-0729

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Henderson, C., Knapp, M., Nelis, SM., Quinn, C., Martyr, A., Wu, Y-T., et al. (2019) 'Use and costs of services and unpaid care for people with mild-to-moderate dementia: Baseline results from the IDEAL cohort study'. Alzheimer's and Dementia: Translational Research and Clinical Interventions, 5 (1). pp. 685 - 696. ISSN: 2352-8737

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Rippon, I., Quinn, C., Martyr, A., Morris, R., Nelis, SM., Jones, IR., et al. (2019) 'The impact of relationship quality on life satisfaction and well-being in dementia caregiving dyads: findings from the IDEAL study'. Aging and Mental Health, 24 (9). pp. 1411 - 1420. ISSN: 1360-7863

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Quinn, C., Nelis, S., Martyr, A., Morris, R., Victor, C. and Clare, L. (2019) 'Caregiver influences on ‘living well’ for people with dementia: Findings from the IDEAL study'. Aging and Mental Health, 24 (9). pp. 1505 - 1513. ISSN: 1360-7863

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Quinn, C., Nelis, SM., Martyr, A., Victor, C., Morris, RG. and Clare, L. (2019) 'Influence of Positive and Negative Dimensions of Dementia Caregiving on Caregiver Well-Being and Satisfaction With Life: Findings From the IDEAL Study'. American Journal of Geriatric Psychiatry, 27 (8). pp. 838 - 848. ISSN: 1064-7481

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Clare, L., Wu, Y-T., Quinn, C., Jones, IR., Victor, C., Nelis, SM., et al. (2019) 'A comprehensive model of factors associated with capability to ‘live well’ for family caregivers of people living with mild-to-moderate dementia: findings from the IDEAL study'. Alzheimer Disease and Associated Disorders, 33 (1). pp. 29 - 35. ISSN: 0893-0341

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Clare, L., Wu, Y-T., Jones, IR., Victor, CR., Nelis, SM., Martyr, A., et al. (2019) 'A Comprehensive Model of Factors Associated With Subjective Perceptions of "Living Well" With Dementia: Findings From the IDEAL Study'. Alzheimer disease and associated disorders, 33 (1). pp. 36 - 41. ISSN: 0893-0341

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Smith, KJ., Peterson, MD., O'Connell, NE., Victor, C., Liverani, S., Anokye, N. and et al. (2018) 'Risk of Depression and Anxiety in Adults with Cerebral Palsy'. JAMA Neurology, 76 (3). pp. 294 - 300. ISSN: 2168-6149

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Litherland, R., Burton, J., Cheeseman, M., Campbell, D., Hawkins, M., Hawkins, T., et al. (2018) 'Reflections on PPI from the ‘Action on Living Well: Asking You’ advisory network of people with dementia and carers as part of the IDEAL study'. Dementia, 17 (8). pp. 1035 - 1044. ISSN: 1471-3012

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Clare, L., Wu, Y-T., Jones, IR., Victor, C., Nelis, SM., Martyr, A., et al. (2018) 'O4-08-04: A COMPREHENSIVE MODEL OF FACTORS ASSOCIATED WITH SUBJECTIVE PERCEPTIONS OF LIVING WELL WITH DEMENTIA: FINDINGS FROM THE IDEAL STUDY'.Alzheimer's Association International Conference® 2018. Chicago, IL, USA. 22 - 26 July. Wiley. pp. P1422 - P1423. ISSN: 1552-5260

Conference paper | Open Access Link | Cite

Rainey-Smith, SR., Mazzucchelli, GN., Villemagne, VL., Brown, BM., Porter, T., Weinborn, M., et al. (2018) 'O4‐06‐01: GENETIC VARIATION IN AQUAPORINS MODERATES THE RELATIONSHIP BETWEEN SLEEP AND BRAIN Aβ‐AMYLOID BURDEN'. Wiley. ISSN: 1552-5260

Conference paper | Cite

Martyr, A., Nelis, SM., Quinn, C., Wu, Y-T., Lamont, RA., Henderson, C., et al. (2018) 'Living well with dementia: a systematic review and correlational meta-analysis of factors associated with quality of life, well-being, and life satisfaction in people with dementia'. Psychological Medicine, 48 (13). pp. 2130 - 2139. ISSN: 0033-2917

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Clare, L., Nelis, SM., Quinn, C., Martyr, A., Henderson, C., Hindle, JV., et al. (2014) 'Improving the experience of dementia and enhancing active life - living well with dementia: study protocol for the IDEAL study'. Health and Quality of Life Outcomes, 12 (1). pp. 164. ISSN: 1477-7525

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